Arthritis Care
This organisation gives information, advice and a newsletter to people of all ages who have arthritis.
Contact: Caroline Cox at Ground Floor Office, Amber Gate, City Walls Rd, Worcester WR1 2AH. Telephone 01905 745595 for further information.
ASBAH (Association for Spina Bifida and Hydrocephalus)
This is the South Wales group who hold meetings in various locations in the area. They have recently started holding meetings in Haverfordwest. They provide information and advice and the chance to meet other people with Spina Bifida and Hydrocephalus and their families.
Contact: Jim Done on 01446 735714.
Epilepsy Action
This is the working name for the British Epilepsy Association whose aim to improve the quality of life for all people with epilepsy and their families. There is also a local accredited volunteer who can visit families in their own home to give advice and support.
Contact: The free helpline 0808 800 5050. Fax: 0808 80 5555 E-mail: helpline@bea.org.uk
CLIMB
CLIMB offers information and advice to parents of children with any type of metabolic condition. The nearest representative is Pam Davies, Family Services Manager who is very willing to be contacted by Pembrokeshire parents.
Contact: 0800 652 3181 Address: 176 Nantwich Road, Crewe, Cheshire, CW2 6BG
Contact a Family
CAF provides information to parents of a child with any kind of disability or chronic health condition. They can help parents of children with rare conditions make contact with other families with similar children. CAF also organises conferences and training for parents.
Contact: 02920 396 624
Down’s Syndrome Association
There is a West and Mid Wales group that meets quarterly in either Carmarthen or Aberystwyth. It is an opportunity for parents caring for a child or young person with Down’s Syndrome to meet other parents and exchange advice and information. Often there is a speaker at the meetings talking about issues relevant to Down’s Syndrome.
Contact: Richard Morgan on 01834 813332 or email richard.morgan@downs-syndrome.org.uk
Mencap
Mencap Cymru provides support and information on a wide range of issues that affect people with a learning disability, their families and carers across Wales. Mencap now has a free helpline that gives direct contact with the Mencap Cymru Community Support Team and Independent Support and Information Service.
Telephone 0808 8000 300 Monday to Friday 8.00am to 8.00pm, Saturday and Sunday 10.00am to 4.00pm.
Muscular Dystrophy
The Muscular Dystrophy Campaign office for Wales is based at the Institute of Medical Genetics, University Hospital of Wales, Heath Park, Cardiff, CF14 4XW. Sally McKensie is the Family Care Officer who can provide information and advice to families and also visits to the home to offer support.
Contact: 02920 744052.
SNAP Cymru
SNAP is a Parent Partnership Service which gives information about a whole range of services available both locally and nationally for parents and children who have, or may have special educational needs. This covers Education, Social Care and Housing, Health, Voluntary Groups, Benefits etc. Parents can ring the project, request a home visit or call into the office. Trained volunteers are able to give parents/carers advice, support and information about their children or young people.
Contact: c/o Penfynnon, Hawthorn Rise, Haverfordwest SA62 2AZ Telephone 01437 768097 or Email: kate.warner@snapcymru.org.uk
SCOPE
Scope offers support and advice to people with Cerebral Palsy and their carers. If you would like further information :
Contact: Action for Children Hawthorn Project on 01437 761330 for the contact number
West Wales Dyslexia Association
The helpline is run by committed volunteers and offers help and guidance to parents of children with Dyslexia or parents who are concerned that their child might have Dyslexia. 0118 966 8271 or visit the website for information on meetings and events (some are held in Carmarthen) at www.swansea.gov.uk/wwda
Local Dyslexia Support
There is now a local support group within Pembrokeshire. They meet at the Cricket Club every month on a Tuesday evening.
Contact: Sandra Young on 01437 721450.